“Joint Hypermobility Handbook: A Guide for the Ehlers-Danlos Syndrome Hypermobility Type and the Hypermobility Syndrome.” Tinkle BT (2010). Left Paw Press, Greens Fork, IN. Won an Award for Publication Excellence (APEX) in healthcare, 2011 Purchase on Amazon
Tinkle BT (2008). “Issues and Management of Joint Hypermobility: A Guide for the EhlersDanlos Syndrome Hypermobility Type and the Hypermobility Syndrome.” Left Paw Press, Mason, OH. Purchase on Left Paw Press
Tinkle BT, Atzinger CA (2010). Ehlers-Danlos Syndromes. In: Management of Genetic Syndromes, 3rd ed. (S Cassidy, J Allanson, eds.). Wiley-Blackwell, pp337-361
Tinkle BT, Grabowski GA (2006). Storage Disorders. In: Pediatric Hematology, 3rd ed. (Hann IM, Arceci RJ, and Smith OP, eds.). Blackwell Publishing Ltd, Oxford, pp 778-791.
Tinkle BT, Saal HM (2004). Health and genetic risk impact on preventive behavior. In: Clinical Preventive Medicine, 2nd ed. (RS Lang and DD Hensrud, eds.). AMA Press, New York, pp 485-496.
Tinkle BT, Jay G (2002). Molecular approaches involved in mammalian gene transfer: Analysis of transgene integration. In: Transgenic Animal Technology: A Laboratory Handbook (CA Pinkert, ed.), 2nd edition. Academic Press, San Diego.
Tinkle BT, Bieberich CJ, Jay G (1994). Molecular approaches involved in mammalian gene transfer: Analysis of transgene integration. In: Transgenic Animal Technology: A Laboratory Handbook (CA Pinkert, ed.). Academic Press, San Diego, pp 221-234.
Tinkle B (2007). Gene Symbol:FBN1. Hum Genet 121:294.
Tinkle BT, RJ Hopkin, Grabowski GA (2004). Enzyme therapy in Fabry disease. Today’s Therapeutic Trends 22(3):181-200.
Bendy Wendy and the (Almost) Invisible Genetic Syndrome: A story of one tween’s diagnosis of Ehlers-Danlos Syndrome / joint hypermobility. Tinkle BT 2017.
Wendy is a perky, vivacious adolescent entering middle school with a lifelong vision of becoming an cheerleader. Wendy has been called bendy by family and friends because she’s been limber and flexible throughout her life, earning her the nickname ‘Bendy Wendy.’
As soon as she’s about to realize her ultimate aspiration of making the cheerleading squad as a flyer, Wendy worries that her dream will be shattered by constant physical issues plaguing her during rigorous practices and performances.
On the outside, Wendy looks perfectly ‘normal,’ but clearly something more is going on. Join Wendy and her parents on their journey through a diagnosis and revelations of Ehlers-Danlos Syndrome / joint hypermobility, an ‘almost’ invisible genetic syndrome.
“Bendy Wendy and the (Almost) Invisible Genetic Syndrome… A story of one tween’s diagnosis of Ehlers-Danlos Syndrome / joint hypermobility” was written to fill a need for families, children, and tweens that find themselves in a position of understanding and explaining, in basic terms, Ehlers-Danlos Syndrome and the issues associated with it.
It’s been thoughtfully developed by bone and connective tissue disorder expert Dr. Brad T Tinkle and his award-winning children’s book author wife, Laurren Darr. For almost a decade, they had dinner-time conversations on how to better serve and reassure children and families affected by Ehlers-Danlos Syndrome / joint hypermobility. “Bendy Wendy and the (Almost) Invisible Genetic Syndrome… A story of one tween’s diagnosis of Ehlers-Danlos Syndrome / joint hypermobility” is the culmination of that goal.